Stress, social support, beliefs, and parenting practices of mothers of autistic children
DOI:
https://doi.org/10.31211/rpics.2023.9.2.308Keywords:
Maternal Stress, Parenting, Social Support, Autism Spectrum Disorder, Cross-sectional StudyAbstract
Background: Previous studies have shown a high prevalence of stress in parents of children with Autism Spectrum Disorder (ASD) and the moderating impact of the social support network. However, few have investigated the relationship between these variables and parental beliefs and practices in the care and stimulation of children with ASD. Aim: To evaluate associations between stress, social support networks, and maternal beliefs/practices in mothers of children with ASD. Method: This cross-sectional correlational study assessed 52 mothers (Mage = 37.50 years) of children with ASD treated in four public health units in the State of São Paulo. A Sociodemographic Questionnaire, the Lipp Stress Symptoms Inventory, the Parental Beliefs and Care Practices Scale, and the Social Social Support Network Scale were applied. Results: A high prevalence (86.5%) of clinical stress was observed among the participants. The perception of social support was low, and mothers with a perception of more social support indicated lower stress levels. Although care practices were generally adequate, mothers experiencing more stress performed fewer stimulation activities with their children. Conclusions: The findings reinforce the importance of evaluating and managing stress, social support networks, and mental health of mothers of children with ASD to facilitate the adoption of stimulation practices that can optimize the development of children with neurodevelopmental alterations.
Downloads
References
American Psychiatric Association. (2013). Manual diagnóstico e estatístico de transtornos mentais (5.ª ed.). Artmed.
Amoras, P. A. T., Martins, M. D. G. T., & Ferreira, P. A. (2022). O Behavior Skills Training (BST) em profissionais para manejo de comportamentos desafiantes em crianças com autismo. Revista Ibero-Americana de Humanidades, Ciências e Educação, 8(4), 1234–1256. https://doi.org/kpxv
Brignell, A., Harwood, R. C., May, T., Woolfenden, S., Montgomery, A., Iorio, A., & Williams, K. (2022). Overall prognosis of preschool autism spectrum disorder diagnoses. Cochrane Database of Systematic Reviews, 28(9), Article CD012749. https://doi.org/kpxw
Carvalho, F. A., de Paula, C. S., Teixeira, M. C. T. V., Zaqueu, L. D. C. C., & D’Antino, M. E. F. (2013). Rastreamento de sinais precoces de transtorno do espectro do autismo em crianças de creches de um município de São Paulo. Revista Psicologia: Teoria e Prática, 15(2), 144–154. https://bit.ly/3P4aL3W
Christmann, M., Marques, M. A. de A., Rocha, M. M. da, & Carreiro, L. R. R. (2017). Estresse materno e necessidade de cuidado dos filhos cm TEA na perspectiva das mães. Cadernos de Pós-Graduação em Distúrbios do Desenvolvimento, 17(2), 8–17. https://doi.org/kpxx
Čolić, M., Dababnah, S., Garbarino, N., & Betz, G. (2022). Parental experiences raising children with autism spectrum disorder in Eastern Europe: A scoping review. International Journal of Developmental Disabilities, 68(1), 1–13. https://doi.org/gr7sk4
Constantinidis, T. C., Silva, L. C. D., & Ribeiro, M. C. C. (2018). “Todo mundo quer ter um filho perfeito”: Vivências de mães de crianças com autismo. Psico-USF, 23(1) 47–58. https://doi.org/gm35nk
Dancey, C., & Reidy, J. (2006). Estatística sem matemática para psicologia: Usando SPSS para Windows. Artmed.
Demyer, M. K. (1979). Parents and children in autism. Halsted Press.
Fachado, A., Martinez, A. M., Villalva, C. M., & Pereira, M. G. (2007). Cultural adaptation and validation of the Medical Outcomes Study Social Support Survey Questionnaire (MOS-SSS). Acta Médica Portuguesa, 20(6), 525–534. https://bit.ly/45d5cWx
Faro, K. C. A., Santos, R. B., Bosa, C. A., Wagner, A., & da Costa Silva, S. S. (2019). Autismo e mães com e sem estresse: Análise da sobrecarga materna e do suporte familiar. Psico, 50(2), Artigo e30080. https://doi.org/kpx3
Giallo, R., Wood, C. E., Jellett, R., & Porter, R. (2013). Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder. Autism, 17(4), 465–480. https://doi.org/ftjcft
Gomes, P. T. M., Lima, L. H. L., Bueno, M. K. G., Araújo, L. A., & Souza, N. M. (2015). Autism in Brazil: A systematic review of family challenges and coping strategies. Jornal de Pediatria, 91(2), 111–121. https://doi.org/f2xx7d
Griep, R. H., Chor, D., Faerstein, E., Werneck, G. L., & Lopes, C. S. (2005). Validade de constructo de escala de apoio social do Medical Outcomes Study adaptada para o português no Estudo Pró-Saúde. Cadernos de Saúde Pública, 21(3), 703–714. https://doi.org/dfhznj
Havert, L. (2023). The true difficulty of autism: Why acceptance matters so much. Teaching and Learning Together in Higher Education, 1(40), Article 15. https://bit.ly/45AlzfW
Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. https://doi.org/f4rb7s
Khan, T. M., Ooi, K., Ong, Y. S., & Jacob, S. A. (2016). A meta-synthesis on parenting a child with autism. Neuropsychiatric Disease and Treatment, 12, 745–762. https://doi.org/f8gngf
Kirby, A. V., Bilder, D. A., Wiggins, L. D., Hughes, M. M., Davis, J., Hall‐Lande, J. A., Lee, L., McMahon, W. M., & Bakian, A. V. (2022). Sensory features in autism: Findings from a large population‐based surveillance system. Autism Research, 15(4), 751–760. https://doi.org/kpzm
Ku, B., Stinson, J. D., & MacDonald, M. (2019). Parental behavior comparisons between parents of children with autism spectrum disorder and parents of children without autism spectrum disorder: A meta-analysis. Journal of Child and Family Studies, 28(6), 1445–1460. https://doi.org/kpzn
Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer Publishing Company.
Lipp, M. E. N. (2000). Manual do Inventário de Sintomas de Stress para Adultos de Lipp (ISSL). Casa do Psicólogo.
Liu, S., Zhang, L., Yi, J., Liu, S., Li, D., Wu, D., & Yin, H. (2023). The relationship between parenting stress and parental burnout among Chinese parents of children with ASD: A moderated mediation model. Journal of Autism and Developmental Disorders, 53(1), 1–11. https://doi.org/gr8rk7
Lopes, V. D., Murari, S. C., & Kienen, N. (2021). Capacitação de pais de crianças com TEA: Revisão sistemática sob o referencial da Análise do Comportamento. Revista Educação Especial, 34, 1–28. https://doi.org/kpzp
Mansur, M., Masyasari, R., Awad, F. B., & Asriyanti, A. (2022). Self acceptance in parents of children with autism. KnE Social Sciences, 7(8), 453–461. https://doi.org/kpzq
Martins, G. D. F., Macarini, S. M., Vieira, M. L., Seidl-de-Moura, M. L., Bussab, V. S. R., & Cruz, R. M. (2010). Construção e validação da Escala de Crenças Parentais e Práticas de Cuidado (E-CPPC) na primeira infância. Psico-Usf, 15(1), 23–34. https://doi.org/b9mxr4
Meimes, M. A., Saldanha, H. C., & Bosa, C. A. (2015). Adaptação materna ao transtorno do espectro autismo: Relações entre crenças, sentimentos e fatores psicossociais. Psico, 46(4), 412–422. https://doi.org/kpzr
Miele, F. G., & Amato, C. A. de la H. (2018). Transtorno do espectro autista: Qualidade de vida e estresse em cuidadores e/ou familiares - revisão da literatura. Cadernos De Pós-Graduação Em Distúrbios Do Desenvolvimento, 16(2), 89–102. https://bit.ly/47MYk3c
Milgram, N. A., & Atzil, M. (1988). Parenting stress in raising autistic children. Journal of Autism and Developmental Disorders, 18, 415–424. https://doi.org/bwqvqs
Nunes, M. A. F., & Santos, M. A. (2010). Itinerário terapêutico percorrido por mães de crianças com transtorno autístico. Psicologia: Reflexão e Crítica, 23(2), 208–221. https://doi.org/bgz2kp
Nuske, H. J., Shih, W. I., Sparapani, N., Baczewski, L., Dimachkie Nunnally, A., Hochheimer, S., Garcia, C., Castellon, F., Levato, L., Fischer, E., Atkinson-Diaz, Z. L., Mandell, D. S., Kasari, C., & Autism Intervention Research—Behavioral 1 team. (2022). Self-regulation predicts companionship in children with autism. International Journal of Developmental Disabilities, 68(6), 889–899. https://doi.org/j5p5
Pimenta, R. d. A., Rodrigues, L. A. R., & Greguol, M. (2010). Avaliação da qualidade de vida e sobrecarga de cuidadores de pessoas com deficiência intelectual. Revista Brasileira De Ciências Da Saúde, 14(3), 69-76. https://doi.org/btjt3h
Prendeville, P., & Kinsella, W. (2019). The role of grandparents in supporting families of children with autism spectrum disorders: A family systems approach. Journal of Autism and Developmental Disorders, 49(2), 738–749. https://doi.org/gq83s6
Schmidt, C., & Bosa, C. (2007). Estresse e auto-eficácia em mães de pessoas com autismo. Arquivos Brasileiros de Psicologia, 59(2), 179–191. https://bit.ly/3KniiSx
Sherbourne, C. D., & Stewart, A. L. (1991). The MOS social support survey. Social Science & Medicine, 32(6), 705–714. https://doi.org/dzxxrq
Sim, A., Cordier, R., Vaz, S., & Falkmer, T. (2019). “We are in this together”: Experiences of relationship satisfaction in couples raising a child with autism spectrum disorder. Research in Autism Spectrum Disorders, 58, 39–51. https://doi.org/ghrwfv
Siklos, S., & Kerns, K. A. (2006). Assessing need for social support in parents of children with autism and Down syndrome. Journal of Autism and Developmental Disorders, 36(7), 921–933. https://doi.org/ddpsff
Singh, P., Ghosh, S., & Nandi, S. (2017). Subjective burden and depression in mothers of children with autism spectrum disorder in India: Moderating effect of social support. Journal of Autism and Developmental Disorders, 47(10), 3097–3111. https://doi.org/ggs7bm
Yip, C. C. H., & Chan, K. K. S. (2022). Longitudinal impact of public stigma and courtesy stigma on parents of children with autism spectrum disorder: The moderating role of trait mindfulness. Research in Developmental Disabilities, 127, Article 104243. https://doi.org/grcq8b
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 Michele Christmann, Adriana Furer Barreto, Felipe Alckmin-Carvalho, Marina Monzani da Rocha
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
The authors retain the copyright and grant the journal right of first publication with the work simultaneously licensed under the Creative Commons Attribution-NonCommercial 4.0 International License that allows the sharing of work and recognition of authorship and initial publication in this journal.