Desenvolvimento do Questionário de Motivações para Revelar/Não Revelar a Parentalidade Não-Genética por Doação de Gâmetas
DOI:
https://doi.org/10.7342/ismt.rpics.2017.3.1.35Palavras-chave:
gâmetas de dador, motivações para revelar, parentalidade, segredo, Estudo exploratórioResumo
Introdução: A parentalidade constitui um objetivo muito valorizado socialmente, no entanto, para casais com infertilidade este pode implicar a realização de tratamentos de médicos, alguns deles com recurso a gâmetas de dador. Para estes últimos, surge uma preocupação adicional: revelar à criança a origem da sua conceção ou manter segredo. Ainda que as motivações que influenciam este processo de decisão tenham sido alvo de estudo, em Portugal a investigação é escassa. Objetivos: Pretendeu desenvolver-se o Questionário de Motivações para Revelar/Não Revelar a Parentalidade não Genética por Doação de Gâmetas (QMRDG), o qual se destina a avaliar as principais motivações que influenciam o processo de tomada de decisão dos pais que recorrem a gâmetas de dador relativamente a contar ou não contar ao/à seu/sua filho/a a origem da sua conceção. Método: Estudo exploratório conduzido numa amostra de 21 participantes, com idades entre os 30 e os 49 anos, que realizaram tratamento de infertilidade com recurso a gâmetas de dador e se tornaram pais. Os participantes preencheram um conjunto de questionários numa plataforma online. Resultados: O QMRDG revelou possuir itens claros e de fácil compreensão. Os dados obtidos indicam que a maioria dos pais ainda não contou à criança a sua origem genética devido à reduzida idade da mesma, encontrando-se estes com intenção de revelar. Para os pais que já contaram, das motivações que mais influenciaram esta decisão salienta-se a importância dada à honestidade e ao direito do conhecimento das origens genéticas. Relativamente às motivações para não contar ressalta-se a pouca importância dada à genética. Conclusão: O QMRDG parece constituir um instrumento promissor na prática clínica e na investigação com pessoas que estejam a realizar tratamentos de infertilidade com recurso a gâmetas de dador. Nesta investigação, a tendência indicada pelos pais foi a de contar à criança a origem da sua conceção.
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Referências
Applegarth, L. D., Kaufman, N. L., Josephs-Sohan, M., Christos, P. J., & Rosenwaks, Z. (2016). Parental disclosure to offspring created with oocyte donation: Intentions versus reality. Human Reproduction, 31(8), 1-7. [Google Scholar] [CrossRef]
Baccino, G., Salvadores, P., & Hernández, E. R. (2013). Disclosing their type of conception to offspring conceived by gamete or embryo donation in Spain. Journal of Reproductive and Infant Psychology, 32(1), 83-95. [Google Scholar] [CrossRef]
Benward, J. (2015). Disclosure: Helping families talk about assisted reproduction. In S. N. Covington (Ed.), Fertility counselling: Clinical guide and case studies (pp. 252-264). Cambridge: Cambridge University Press. [Google Scholar]
Blake, L., Jadva, V., & Golombok, S. (2014). Parent psychological adjustment, donor conception and disclosure: A follow-up over 10 years. Human Reproduction, 29(11), 2487-2496. [Google Scholar] [CrossRef]
Blyth, E., Langridge, D., & Harris, R. (2010). Family building in donor conception: Parents’ experiences of sharing information. Journal of Reproductive and Infant Psychology, 28(2), 116-127. [Google Scholar] [CrossRef]
Campus, B. (2011). Helping couples through the crisis of infertility, 2011, 24-30. [Google Scholar] [ResearchGate]
Carvalho, J., & Santos, A. (2009). Estudo AFRODITE - Caracterização da infertilidade em Portugal [AFRODITE study - Characterization of infertility in Portugal]. [Google Scholar] [URL]
Conselho Nacional de Procriação Medicamente Assistida. (2014). Relatório: Atividade desenvolvida pelos centros de PMA em 2013 (Research report). Lisboa: CNPMA. [URL]
Cousineau, T. M., & Domar, A. D. (2007). Psychological impact of infertility. Best Practice & Research Clinical Obstetrics and Gynaecology, 21(2), 293-308. [Google Scholar] [CrossRef]
Daniels, K. R., Grace, V. M., & Gillett, W. R. (2011). Factors associated with parents’ decisions to tell their adult offspring about the offspring's donor conception. Human Reproduction, 26(10), 2783-2790. [Google Scholar] [CrossRef]
Datta, J., Palmer, M. J., Tanton, C., Gibson, L. J., Jones, K. G., Macdowall, W., . . . Wellings, K. (2016). Prevalence of infertility and help seeking among 15 000 women and men. Human Reproduction, 2016, 1-11. [Google Scholar] [CrossRef]
Decreto de Lei no 32/2006 de 26 de Julho do Ministério da Saúde, Pub. L. No. Diário da República: I série, no 143 (2006).
Deka, P. K., & Sarma, S. (2010). Psychological aspects of infertility. British Journal of Medical Practitioners, 3(3), 32-33. [Google Scholar] [URL]
Domar, A. D. (2015). Creating a collaborative model of mental health counseling for the future. Fertility and Sterility, 104(2), 277-280. [Google Scholar] [CrossRef]
Domar, A., Gordon, K., Garcia-Velasco, J., La Marca, A., Barriere, P., & Beligotti, F. (2012). Understanding the perceptions of and emotional barriers to infertility treatment: A survey in four European countries. Human Reproduction, 27(4), 1073-1079. [Google Scholar] [CrossRef]
Ethics Committee of the American Society for Reproductive Medicine. (2004). Informing offspring of their conception by gamete donation. Fertility and Sterility, 81(3), 527-531. [Google Scholar] [CrossRef]
Ethics Committee of the American Society for Reproductive Medicine. (2013). Informing offspring of their conception by gamete or embryo donation: A committee opinion. Fertility and Sterility, 100(1), 45-49. [Google Scholar] [CrossRef]
Fertility Counseling. (2015). Disclosure: Helping families talk about assisted reproduction. In S. N. Convington (Ed.), Clinical guide and case studies (pp. 252-263). Cambridge: Cambridge University Press. [Google Scholar]
Freeman, T., & Golombok, S. (2012). Donor insemination: A follow-up study of disclosure decisions, family relationships and child adjustment at adolescence. Reproductive BioMedicine Online, 25(2), 193-203. [Google Scholar] [CrossRef]
Golombok, S., Blake, L., Casey, P., Roman, G., & Jadva, V. (2013). Children born through reproductive donation: A longitudinal study of psychological adjustment. Journal of Child Psychology and Psychiatry, 54(6), 653-660. [Google Scholar] [CrossRef]
Greenfeld, D. A., & Klock, S. C. (2004). Disclosure decisions among known and anonymous oocyte donation recipients. Fertility and Sterility, 81(6), 1565-1571. [Google Scholar] [CrossRef]
Greil, A., McQuillan, J., & Slauson-Blevins, K. (2011). The Social Construction of Infertility. Sociology Compass, 5(8), 736-746. [Google Scholar] [CrossRef]
Greil, A., Slauson-Blevins, K., & McQuillan, J. (2010). The experience of infertility: A review of recent literature. Sociology of Health & Illness, 32(1), 140-162. [Google Scholar] [CrossRef]
Hahn, S. J., & Craft-Rosenberg, M. (2002). The disclosure decisions of parents who conceive children using donor eggs. Journal of Obstetric, Gynecologic, & Neonatal Nurging, 31(3), 283-293. [Google Scholar] [CrossRef]
Hargreaves, K., & Daniels, K. (2007). Parents dilemmas in sharing donor insemination conception stories with their children. Children & Society, 21(6), 420-431. [Google Scholar] [CrossRef]
Hershberger, P., Klock, S. C., & Barnes, R. B. (2007). Disclosure decisions among pregnant women who received donor oocytes: A phenomenological study. Fertility and Sterility, 87(2), 288-296. [Google Scholar] [CrossRef]
Hunter, M., Salter-Ling, N., & Glover, L. (2000). Donor insemination: Telling children about their origins. Child Psychology and Psychiatry, 5(4), 157-163. [Google Scholar] [CrossRef]
Indekeu, A., Dierickx, K., Schotsmans, P., Daniels, K. R., Rober, P., & D’Hooghe, T. (2013). Factors contributing to parental decision-making in disclosing donor conception: A systematic review. Human Reproduction Update, 19(6), 714-733. [Google Scholar] [CrossRef]
Isaksson, S., Skoog-Svanberg, A., Sydsjö, G., Linell, L., & Lampic, C. (2016). It takes two to tango: Information-sharing with offspring among heterosexual parents following identity-release sperm donation. Human Reproduction, 31(1), 125-132. [Google Scholar] [CrossRef]
Isaksson, S., Sydsjö, G., Skoog-Svanberg, A., & Lampic, C. (2012). Disclosure behaviour and intentions among 111 couples following treatment with oocytes or sperm from identity-release donors: follow-up at offspring age 1-4 years. Human Reproduction, 27(10), 2998-3007. [Google Scholar] [CrossRef]
Klock, S. C., & Greenfeld, D. A. (2004). Parents’ knowledge about the donors and their attitudes toward disclosure in oocyte donation. Human Reproduction, 19(7), 1575-1579. [Google Scholar] [CrossRef]
Lalos, A., Gottlieb, C., & Lalos, O. (2007). Legislated right for donor-insemination children to know their genetic origin: A study of parental thinking. Human Reproduction, 22(6), 1759-1768. [Google Scholar] [CrossRef]
Laruelle, C., Place, I., Demeestere, I., Englert, Y., & Delbaere, A. (2011). Anonymity and secrecy options of recipient couples and donors, and ethnic origin influence in three types of oocyte donation. Human Reproduction, 26(2), 382-390. [Google Scholar] [CrossRef]
Lindblad, F., Gottlieb, C., & Lalos, O. (2000). To tell or not to tell-what parents think about telling their children that they were born following donor insemination. Journal of Psychosomatic Obstetrics & Gynaecology, 21(4), 193-203. [Google Scholar] [CrossRef]
Lycett, E., Daniels, K., Curson, R., & Golombok, S. (2004). Offspring created as a result of donor insemination: A study of family relationships, child adjustment, and disclosure. Fertility and Sterility, 82(1), 172-179. [Google Scholar] [CrossRef]
Lycett, E., Daniels, K., Curson, R., & Golombok, S. (2005). School-aged children of donor insemination: A study of parents’ disclosure patterns. Human Reproduction, 20(3), 810-819. [Google Scholar] [CrossRef]
Lykeridou, K., Gourounti, K., Deltsidou, A., Loutradis, D., & Vaslamatzis, G. (2009). The impact of infertility diagnosis on psychological status of women undergoing fertility treatment. Journal of Reproductive and Infant Psychology, 27(3), 223-237. [Google Scholar] [CrossRef]
Mascarenhas, M. N., Flaxman, S. R., Boerma, T., Vanderpoel, S., & Stevens, G. A. (2012). National, regional, and global trends in infertility prevalence Since 1990: A systematic analysis of 277 health surveys. PLoS Medicine, 9(12), 1-12. [Google Scholar] [CrossRef]
McGee, G., Brakman, S. V., & Gurmankin, A. (2001). Gamete donation and anonymity: Disclosure to children conceived with donor gametes should be optional. Human Reproduction, 16(10), 2036-2038. [Google Scholar] [CrossRef]
Murray, C., & Golombok, S. (2003). To tell or not to tell: The decision-making process of egg-donation parents. Human Fertility, 6(2), 89-95. [Google Scholar] [CrossRef]
Nachtigall, R. D., Becker, G., Quiroga, S. S., & Tschann, J. M. (1998). The disclosure decision: Concerns and issues of parents of children conceived through donor insemination. American Journal of Obstetrics and Gynecology, 178(6), 1165-1170. [Google Scholar] [CrossRef]
Nachtigall, R. D., Tschann, J. M., Quiroga, S. S., Pitcher, L., & Becker, G. (1997). Stigma, disclosure, and family functioning among parents of children conceived through donor insemination. Fertility and Sterility, 68(1), 83-89. [Google Scholar] [CrossRef]
Petok, W. D. (2014). Sperm donation: Psychological aspects. In J. M. Goldfarb (Ed.), Third-party reproduction: A comprehensive guide (pp. 159-168). New York, NY: Springer. [Google Scholar]
Ramazanzadeh, F., Noorbala, A. A., Abedinia, N., & Naghizadeh, M. M. (2009). Emotional adjustment in infertile couples. Iranian Journal of Reproductive Medicine, 7(3), 97-103. [Google Scholar] [PDF]
Readings, J., Blake, L., Casey, P., Jadva, V., & Golombok, S. (2011). Secrecy, disclousure and everything in-between: Decisions of parents of children conceived by donor insemination, egg donation and surrogacy. Reproductive Biomedicine Online, 22(5), 485-495. [Google Scholar] [CrossRef]
Sälevaara, M., Suikkari, A. M., & Söderström-Anttila, V. (2013). Attitudes and disclosure decisions of finnish parents with children conceived using donor sperm. Human Reproduction, 28(10), 2746-2754. [Google Scholar] [CrossRef]
Salter-Ling, N., Hunter, M., & Glover, L. (2001). Donor insemination: Exploring the experience of treatment and intention to tell. Journal of Reproductive and Infant Psychology, 19(3), 175-186. [Google Scholar] [CrossRef]
Santos, T. A., & Moura-Ramos, M. (2010). As técnicas de procriação medicamente assistida [The medically assisted reproductive techiques]. In Esterilidade e procriação medicamente assistida [Sterility and medically assisted reproductive] (pp. 79-99). Coimbra: Coimbra University Press. [Google Scholar]
Söderström-Anttila, V., Sälevaara, M., & Suikkari, A. M. (2010). Increasing openness in oocyte donation families regarding disclosure over 15 years. Human Reproduction, 25(10), 2535-2542. [Google Scholar] [CrossRef]
van den Akker, O. (2001). The acceptable face of parenthood: The relative status of biological and cultural interpretations of offspring in infertility treatment. Psychology, Evolution & Gender, 3(2), 137-153. [Google Scholar] [CrossRef]
Yazdani, F., Kazemi, A., & Ureizi-Samani, H. R. (2016). Studying the relationship between the attitude to infertility and coping strategies in couples undergoing assisted reproductive treatments. Journal of Reproduction & Infertility, 17(1), 56-60. [Google Scholar] [PMC]
Zegers-Hochschild, F., Adamson, G. D., Mouzon, J., Ishihara, O., Mansour, R., Nygren, K., . . . Vanderpoel, S. (2009). International Committee for Monitoring Assisted Reproductive Technology (ICMART) and the World Health Organization (WHO) revised glossary of ART terminology. Fertility and Sterility, 92(5), 1520-1524. [Google Scholar] [CrossRef]
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Direitos de Autor (c) 2017 Cristiana Rafaela Caldeira Marques, Ana Galhardo, Marina Cunha, & Margarida Couto
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