Mediation between hospital social work and the informal support network in continuing healthcare
DOI:
https://doi.org/10.31211/rpics.2020.6.2.189Keywords:
Continuing healthcare, social work, health, aging, informal social supportAbstract
Objective: The study aimed to analyze the mediation between healthcare and informal social support in the continuing healthcare process. Participants: fifty-seven patients were referred in 2019 by a hospital to the Rede Nacional de Cuidados Continuados Integrados in Portugal (a continuing healthcare services network). The sample was mostly female (63.2%; n = 36), with an average age of 80 years old (DP = 9.2), predominantly from rural areas (64.9%; n = 37), married (56.1%; n = 32), and 35.0% lived alone (n = 20). Methods: Descriptive study with univariate quantitative analysis and categorical content analysis of social work data. Results: Of the 57 patients referred to the Network, deaths and cancellations were registered in 32 cases (56.1%). Of the 25 patients discharged from the Network in the post-discharge period, all needed informal and/or formal support, while at the hospital referral date, only 20.0% of the sample needed support (p < .001). Of those who had support, about a third had support from the primary social network, mostly from their sons or daughters, and about half of the patients had emigrant children. At post-discharge 64.0% (n = 16 out of 25) had informal support. We also found that 8.8% of the patients were caregivers and began to require care. Conclusion: The study confirms the importance of ensuring continued care for citizens who have seen their vulnerability increased by illness, as well as the centrality of the informal support system for patients.Downloads
References
Administração Central do Sistema de Saúde. (2018). Relatório de Monitorização da Rede Nacional de Cuidados Continuados Integrados. SNS. https://www.ipss-acaso.org/site_content/download/7004/779/38
Alves, S., Ribeiro, O., & Paúl, C. (2020). Unmet needs of informal carers of the oldest old in Portugal. Health and Social Care in the Community, 28, 2408–2417. https://doi.org/10.1111/hsc.13063
Barbosa, F., Voss, G., & Matos, A. D. (2020). Health impact of providing informal care in Portugal. BMC Geriatrics, 20, Artigo 440. https://doi.org/10.1186/s12877-020-01841-z
Cabral, M. V. (Org.) (2013). Processos de envelhecimento em Portugal. Fundação Francisco Manuel dos Santos. https://bit.ly/2HEZFCS
Carvalho, M. I. (2012). Cuidados continuados integrados e serviço social. Em Carvalho, M. I. (coord.) (Ed.), Serviço social na saúde (pp. 83–110). Pactor.
Carvalho, M. I. (2015). Cuidados familiares prestados a pessoas idosas. Em Carvalho, M. I. (Ed.), Serviço social com famílias (pp. 239–250). Pactor.
Eurocarers. (2020). Number of carers and existing support measures across the EU. https://eurocarers.org/about-carers/
European Union. (2018). Informal care in Europe exploring formalisation, availability and quality. https://bit.ly/3m7GKzB
Fronteira, I., Simoes, J., & Augusto, G. (2019). Informal carer in Portugal: Moving towards political recognition in Portugal. European Journal of Public Health, 29(Sup. 4), ckz187.178. https://doi.org/10.1093/eurpub/ckz187.178
Gabinete de Estratégia e Planeamento do Ministério do Trabalho, Solidariedade e Segurança Social. (2019). Carta social – Rede de serviços e equipamentos 2018 [Relatório]. http://www.cartasocial.pt/pdf/csocial2018.pdf
Guadalupe, S. (2012). A intervenção do serviço social na saúde com famílias e em redes de suporte social. Em Carvalho, M. I. (coord.). Serviço social na saúde (pp. 183–217). Pactor.
Guadalupe, S., & Cardoso, J. (2018). As redes de suporte social informal como fontes de provisão social em Portugal: o caso da população idosa. Revista Sociedade e Estado, 33(1), 215–250. https://doi.org/10.1590/s0102-699220183301009
Lima, M. (2010). Envelhecimento(s): Estado da arte. Imprensa da Universidade de Coimbra.
Masfret, D. C. (2012). O serviço social de saúde e o planeamento da alta para a continuidade de cuidados na comunidade. Em Carvalho, M. I. (Ed.), Serviço Social com Famílias (pp. 55–81). Pactor.
Organização Mundial de Saúde. (1999). Glossaire de la promocion de la santé. Organization Mondiale de la Santé. http://www.quebecenforme.org/
Organização Mundial de Saúde. (2014). CIF – Classificação Internacional de Funcionalidade, Incapacidade e Saúde. Direção Geral da Saúde. https://bit.ly/2JccHIB
Ornstein, K. A., Wolff, J. L., Bollens-Lund, E., Rahman, O.-K., & Kelley, A. S. (2019). Spousal caregivers are caregiving alone in the last years of life, Health Affairs, 38(6), 964–972. https://doi.org/10.1377/hlthaff.2019.00087
Pego, M. A., & Nunes, C. (2018). Aging, disability, and informal caregivers: A cross-sectional study in Portugal. Frontiers in Medicine, 4, Artigo 255. https://doi.org/10.3389/fmed.2017.00255
Pereirinha, J. (1997). A (re)definição dos direitos sociais face à crise do Estado-Providência e ao fenómeno da exclusão social. Intervenção Social, 15/16, 131–142. https://bit.ly/39c5P8R
Petronilho, F. A. S. (2007). Preparação do regresso a casa. Formação e Saúde.
Pimentel, L. (2012). Cuidar de pessoas idosas dependentes: As interseções entre a esfera pública e a esfera privada. Rediteia, 45, 67–77. https://bit.ly/3mdkC6N
Pordata. (2020). Base de dados de Portugal contemporâneo. Fundação Francisco Manuel dos Santos. https://www.pordata.pt/Home
Portugal, S. (2014). Famílias e redes sociais. Ligações fortes na produção de bem estar. Almedina.
Ribeiro, J. L. P. (2007). Metodologia de investigação em psicologia e em saúde. Legis Editora.
Soeiro, J., Araújo, M., & Figueiredo, S. (2020). Cuidar de quem cuida – histórias e testemunhos de um trabalho invisível, um manifesto para o futuro. Penguin Random House.
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